After being sick for so long, I finally have a name for my illness: Postural Orthostatic Tachycardia Syndrome, otherwise known as P.O.T.S.

A cardiac condition that's stripped me of my health, weight (causing me to drop to anorexic weight), self confidence, friends, jobs and continuing my education.

My goals are simple: gain weight, be healthier, and get out more. Basically, get my life back!

I'm also hoping to spread some awareness on this little known condition, and to highlight the struggles of the underweight and people with "invisible illnesses."

Monday, April 11, 2011

Stormy Monday

Having some serious rage today over having to constantly monitor stuff and having to go through all of these friggin tests. I have to take my blood pressure four times a day, and any time I'm symptomatic. I also have to go for the gastric emptying test.

That is scheduled for Thursday.

Plus, I'm a little concerned about starting Atenolol. I picked up the prescription the other day and the pharmacist warned me to absolutely not take it if you have low blood pressure because it's a beta blocker. I have low blood pressure.

Now, I know that the doctor who prescribed it is aware of how low my blood pressure is, and that she's also a specialist in this condition. But still...I've left her a message just double checking with her that this is the route she wants to take because the warning freaked me out a little bit.

Amount of sleep:

pitiful. The dogs were horribly annoying all night. Went to bed at 12, up at 1:30, up at 3, up at 5, up at 6:15, then up at 9.


Heart rate a.m. :
laying down: 98/55 HR: 76
standing: 86/64 HR:134
symptom attack: 77/55 HR 90, 82/45 HR:98


Diet:
- Breakfast: big bowl of rice krispies with lactaid and brown sugar. extra glass of milk. (about 2.5 cups total)
- Lunch: turkey, stuffing, cranberry sauce, little dr. pepper.
- Dinner: steak, potatoes and green beans, 2.5 cups water
- Snack 1: pretzels, small glass dr. pepper
- Snack 2: handful hershey eggs...6+ cups of water over the course of the night

Exercise/activities:

- fixed the backyard fence

P.O.T.S. symptoms experienced:

so far: pounding heart, short of breath, extremely low blood pressure, inability to breathe

Heart rate p.m. :
laying down: 88/61 HR:59...also, irregular heartbeat
standing: 87/64 HR: 86

Misc:
- Feeling pretty off today. It's warm and incredibly humid, so it's very hard for me to breathe.
- cyst pain seems better

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