After being sick for so long, I finally have a name for my illness: Postural Orthostatic Tachycardia Syndrome, otherwise known as P.O.T.S.

A cardiac condition that's stripped me of my health, weight (causing me to drop to anorexic weight), self confidence, friends, jobs and continuing my education.

My goals are simple: gain weight, be healthier, and get out more. Basically, get my life back!

I'm also hoping to spread some awareness on this little known condition, and to highlight the struggles of the underweight and people with "invisible illnesses."

Tuesday, May 10, 2011

True start of the season Tuesday...

Hand is still purplish on/off.
Did some research on Raynaud's Phenomenon (something I've always had) and it turns out there's an uncommon form called "Unilateral Raynaud's" where only one hand or foot turns purple from poor circulation.
(I had no idea about that, so it's funny that yesterday's title was something similar lol)
I'm still going to take the pictures I took in with me when I see the specialist next seeing as my meds are supposed to up my blood flow and improve my circulation, so this shouldn't happen.
(Plus it's not cold here, so I don't understand why it's happening at all!)

In other news, it was a nice day here (70 and breezy) and I had my first ice cream cone of the season :)

I have no idea why the picture focused on everything but my cone lol


Amount of sleep: Maybe six hours? Recurring dream about being pregnant, what the heck!

Diet:
- Breakfast: nutella on bread 2.5 cups water
- Dinner: pepperjack filled hamburgers (boyfriend's specialty), oven roasted potatoes, mushrooms, 2.5 cups water
- Snack 1: baby ice cream cone-first of the season! 1.5 cups Dr. Pepper
- Snack 2: handful hershey eggs, 2.5 cups water

Exercise/activities:
- pool stuff...long story

P.O.T.S. symptoms experienced:
arrhythmia, pounding heart, headache, nausea, feeling of constant fullness, cold extremities, fatigue, sleep disturbances

Misc:
- leg and arm are still cold

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