After being sick for so long, I finally have a name for my illness: Postural Orthostatic Tachycardia Syndrome, otherwise known as P.O.T.S.

A cardiac condition that's stripped me of my health, weight (causing me to drop to anorexic weight), self confidence, friends, jobs and continuing my education.

My goals are simple: gain weight, be healthier, and get out more. Basically, get my life back!

I'm also hoping to spread some awareness on this little known condition, and to highlight the struggles of the underweight and people with "invisible illnesses."

Tuesday, May 24, 2011

POTS follow up Tuesday

Today's my follow up with the POTS specialist.
*******
I'm going to start taking Midodrine, and I have to go get compression stockings which I'm sure will be undeniably sexy...(not.)
Maybe I can get some that are made to look like they have the seams up the back like the old-time pin-up girls. (I can dream, right?)

I got some upsetting news while I was there too, that I'm not in the mood to talk about.
(I'm physically okay)
I came home crying, and my sister (who's home for the summer) was surprisingly supportive... while my mom has done nothing but cut me down all night.
It hurts.
I've spent the last few hours crying for the second time today.
My boyfriend's extremely angry at my mom's attitude towards this.

The POTS doctor gave me a dvd (about POTS and what living with the condition is like) to have my parents watch to get them to try and understand my condition and how it affects me. If I thought they would watch it, I would tell them about it...but they won't.


Amount of sleep:
about 5 hours

Diet:
- Breakfast: bagel, 1.5 cups cranberry juice
- Lunch: none. 2 cups water
- Dinner: steak with baked potato (butter, sour cream, salt, fake bacon bits, cheese), garlic bread
- Snack 1: 2 cups dr. pepper
- Snack 2:


Exercise/activities:
-n/a

P.O.T.S. symptoms experienced:
so far: pounding heart, headache, nausea, chills, aches, shakes, chest pain, difficulty breathing, arrhythmia

Misc:
- o.b. (hopefully for the last day)

2 comments:

  1. I'm glad to hear the the doctor had some treatment suggestions for you, and I hope they work to bring you some relief!

    I'm sorry to hear you're so upset. I hope you know you can reach out to me if you ever need too :-)

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  2. Thanks Becky, and thanks for answer my texts in the middle of the night lol

    ReplyDelete