After being sick for so long, I finally have a name for my illness: Postural Orthostatic Tachycardia Syndrome, otherwise known as P.O.T.S.

A cardiac condition that's stripped me of my health, weight (causing me to drop to anorexic weight), self confidence, friends, jobs and continuing my education.

My goals are simple: gain weight, be healthier, and get out more. Basically, get my life back!

I'm also hoping to spread some awareness on this little known condition, and to highlight the struggles of the underweight and people with "invisible illnesses."

Wednesday, June 15, 2011

All the cool kids dream of chronic illness.

Last night my mom and I got into it.
Again.

She thinks that I've been doing absolutely nothing with my time. She says that I should have figured out other schools to go to and have a job by now; that I'm doing nothing with my life.

I find this attitude to be incredibly hurtful.

As if it's not enough to deal with almost-constantly feeling awful, I have to put up with this too?
***

This is something that seems to be a common theme among chronic illness patients.

Parents, family members, coworkers, and friends don't understand what having a chronic illness is truly like because they've never had one.
Just because a chronically ill person looks fine, doesn't mean that they are fine.

POTS is considered to be an invisible illness for a reason.
I look fine, healthy even.
But the reality is that I'm not. As this blog can attest to.
I mean, really, would I spend thousands of dollars on doctors and specialists for absolutely nothing? For no reason?
Would anyone want to go through this for fun?!?!
According to her, yes.
I'm doing this just to "live off the government" and do nothing with my life.

Apparently, all the cool kids dream of chronic illness
.
thanks J for the great sarcastic line :)

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