After being sick for so long, I finally have a name for my illness: Postural Orthostatic Tachycardia Syndrome, otherwise known as P.O.T.S.

A cardiac condition that's stripped me of my health, weight (causing me to drop to anorexic weight), self confidence, friends, jobs and continuing my education.

My goals are simple: gain weight, be healthier, and get out more. Basically, get my life back!

I'm also hoping to spread some awareness on this little known condition, and to highlight the struggles of the underweight and people with "invisible illnesses."

Tuesday, July 5, 2011

So now it's tomorrow...

I fully intended to get my records today and start calling some lawyers. I really did.
The records lady had told me that she would have my stuff together for my by the end of last week, so it should be no problem today right? Well, in theory anyways.

I got up early-around 8 (which I realize isn't early for most working people)- and headed out there.
I went in and asked for my records, and the receptionist looked at me like I was crazy. She went through the files cabinet of records waiting to be picked up and couldn't find mine. Ugh.

So, she went to ask the woman in charge of records, and she came out to tell me that she hadn't gotten to them yet. Double ugh. She then told me that she could have them for me by the end of the week-again but as long as I was there I should sign a records release. I wasn't pleased.

It turns out that irritation is a great motivator. I went for a short drive after that, and by the time I'd gotten home and settle in for lunch, she called me to double check what I'd requested (last 5 years of records in full. everything) and then said she should have them for me tomorrow. She would call me either way so I don't waste another trip.

I'm crossing my fingers that I really do get my hands on them tomorrow. It's important to not keep wasting time on this, seeing as the odds are already way against me.
Plus, I'm very curious to see what's in them. Like that pesky "fatal" note in my record that my specialist keeps talking about...

On the plus side, my irritation served me well as I got the whole house cleaned up...quite the task considering the weather's continued effect on my POTS- bad arrhythmia, heat intolerance, migraines, nausea...the whole gamut. (In spite of it, I hope to make it to my sister's outdoor concert tonight...)

2 comments:

  1. Good luck getting your records! I hope they don't keep pulling your chain. I beat it will be really interesting to see what all these doctors have been "saying" about you. And it'll definitely be good to know you did everything you could when it comes to your legal situation.

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  2. Thank you :) I did get them finally, and it's certainly interesting (not in a good way) what they say about you.

    Although every person I've ever seen has said I'm "pleasant". How little they know me ;)

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