After being sick for so long, I finally have a name for my illness: Postural Orthostatic Tachycardia Syndrome, otherwise known as P.O.T.S.

A cardiac condition that's stripped me of my health, weight (causing me to drop to anorexic weight), self confidence, friends, jobs and continuing my education.

My goals are simple: gain weight, be healthier, and get out more. Basically, get my life back!

I'm also hoping to spread some awareness on this little known condition, and to highlight the struggles of the underweight and people with "invisible illnesses."

Monday, October 17, 2011

Working through it

I can't think of a better title for a post! Work has been increasingly difficult. I was hoping that I would build up some sort of tolerance, but with POTS it doesn't seem that that's possible. I knew it probably wouldn't work that way, but I had hoped!

Some days are better than others. I've worked out a system of waking up over an hour before I need to get up just to take my meds; then I grab another hour of sleep. They take about an hour to kick in, so when I get up it's definitely easier.

The weather is definitely becoming an issue though. We've had awful weather for the last few days, and my symptoms are crazy. My heart's skipping beats, I have migraines, my stomach is upset and my hands and feet keep going numb. My compression stockings help, but they're still not great. I've tried upping my midodrine dosage but it doesn't seem to help all that much.

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