After being sick for so long, I finally have a name for my illness: Postural Orthostatic Tachycardia Syndrome, otherwise known as P.O.T.S.

A cardiac condition that's stripped me of my health, weight (causing me to drop to anorexic weight), self confidence, friends, jobs and continuing my education.

My goals are simple: gain weight, be healthier, and get out more. Basically, get my life back!

I'm also hoping to spread some awareness on this little known condition, and to highlight the struggles of the underweight and people with "invisible illnesses."

Tuesday, August 9, 2011

How do these things work?

So. I tried my compression stockings on today.
Correction: I tried to get my compression stockings on today.
I couldn't do it. They are so tight that I couldn't even get my foot into foot part, and I couldn't get the rest of it on past my calf. Then, I couldn't get the damn things off either...so I sat on my bed and yelled out of frustration.
Finally, I ripped the horrible things off and cursed at them.
I'll make another attempt later or tomorrow.

Amount of sleep:
about 6 hours

Diet:
- Breakfast: slice of bread with nutella, 1.5 cups water
- Lunch: salami sandwich wrap, 1 cup dr. pepper, 1 cup water
- Dinner: steak with roasted potatoes, 2 cups water
- Snack 1: fruit puree, 1.5 cup tea
- Snack 2:


Exercise/activities:
- not much; very rough POTS day; probably due to the weather

P.O.T.S. symptoms experienced: (May be skewed from the testing obviously)
so far: headache, nausea, weakness, exhaustion, dizziness, heat intolerance, arrhythmia, pounding heart

Misc:
- super humid, pouring rain

Monday, August 8, 2011

Pushing through

Pushed myself hard today.
I went and picked up my compression stockings- which are not what I wanted. It turns out that the strength I need only comes in one form: opaque. They're the Sophia Petrillo stockings I was dreading. I'll be trying them tomorrow.

I also took my sister out to run errands today. By the end, I was exhausted but it was productive.
***
On the negative side, I'm having to ration out my meds right now because I can't afford any more. It's incredibly upsetting.


Amount of sleep:
about 6 hours

Diet:
- Breakfast: slice of bread with nutella, 3 cups water
- Lunch: large bowl mac and cheese, 2.5 cups water, 2 cups dr. pepper
- Dinner: McDonalds hamburger and handful fries, 2.5 cups water. (I still can't believe the recommend high calorie foods like this for me...but I still eat them rarely.)
- Snack 1:
- Snack 2:


Exercise/activities:
- testing

P.O.T.S. symptoms experienced: (May be skewed from the testing obviously)
so far: headache, nausea, hand/feet numbness, shakes, weakness, exhaustion, dizziness, heat intolerance

Misc:
- Week #1 of my Vitamin D regimen. So far, so good.

Friday, August 5, 2011

Testing: Day 2

Second, and hopefully last, day of testing.
Thankfully, it was better today than yesterday's was!
So glad it's over with.


Amount of sleep:
about 5 hours

Diet:
- Breakfast: two small homemade donuts, 2 cups water
- Lunch: leftover salmon and chips, 2 cups ginger ale
- Snack 1: 6 bite-sized almond biscotti, 2.5 cup water
- Snack 2:


Exercise/activities:
- testing

P.O.T.S. symptoms experienced: (May be skewed from the testing obviously)
so far: headache, nausea, hand/feet numbness, purple hand, shakes, weakness, vision problems, exhaustion

Misc:
-

Thursday, August 4, 2011

Testing Day 1

I had testing this morning. It was long, sucky and threw my POTS completely out of whack so now I feel downright awful!

Amount of sleep:
about 5 hours

Diet:
- Brunch: banana cocoa muffin, 4 cups water
- Dinner: leftover salmon and chips, 2 cups water
- Snack 1: two small homemade donuts, 1 cup water
- Snack 2:
handful m&ms.

Exercise/activities:
- testing

P.O.T.S. symptoms experienced: (May be skewed from the testing obviously)
so far: headache, nausea, hand/feet numbness, purple hand, shakes, weakness, vision problems, dizziness, spots in front of my eyes, exhaustion

Misc:
-

Wednesday, August 3, 2011

Nervous Wednesday

Getting nervous about some testing I'm having tomorrow so my eating habits are a bit wonky. (Tomorrow they'll be even worse.) Looking forward to being done!
I also threw out my back yesterday so I'm on light duty. Thankfully today it's a bit better, but I'm taking it easy just in case.


Amount of sleep:
about 7 hours. Had a rough night of sleeping so when my alarm went off I rolled over and went back to bed.

Diet:
- Breakfast: two banana cocoa muffin, 2.5 cups water
- Lunch: bacon, cheddar and scallion scones, 2 cups water
- Dinner: herby salmon, rice
- Snack 1: 1 cup dr. pepper
- Snack 2:


Exercise/activities:
- none

P.O.T.S. symptoms experienced:
so far: headache, nausea, hand/feet numbness, heat intolerance, shakes, weakness, vision problems, dizziness, spots in front of my eyes :(

Misc:
- raining all day; very muggy

Tuesday, August 2, 2011

Compressed Tuesday

Got up early this morning and went to a medical supply place that can get my compression stockings! They're going to call me once they place the order. I'm looking forward to seeing how I feel with them and if they help me!

Amount of sleep:
5-6 hours

Diet:
- Breakfast: one banana cocoa muffin, 2.5 cups water
- Lunch: mac and cheese, 1.5 cups dr. pepper
- Dinner: fresh veggie pizza, 3 cups water
- Snack 1: handful M&Ms, 2 cups water
- Snack 2: homemade doughnuts, 2 cups water


Exercise/activities:
- errands

P.O.T.S. symptoms experienced:
so far: headache, hand/feet numbness, heat intolerance, shakes, weakness

Misc:
-

Monday, August 1, 2011

Hello August

So far, not a great POTS day.
I went out and ran errands this morning. First, it was okay. Then about an hour into it, the heat started to get to me and my stomach started to get upset. I was also really lightheaded and my feet started to get a lot of blood pooling in them. They started to get heavy and lose feeling and walking was iffy, so I decided to go home. Driving home was tough and I wonder if it's safe...
Either way, I went home, had lunch (something super salty) and put my legs up which is helping.

I've also called a few places and finally managed to find somewhere that will fit me for my compression stockings. I'm hoping to feel up to making it there tomorrow.

Amount of sleep:
about six hours

Diet:
- Breakfast: two banana cocoa muffins, 2.5 cups water
- Lunch: potato pancakes with shredded cheese, sour cream and facon bits. 1.5 cups dr. pepper
- Dinner: veggie stir fry with pasta (yellow and orange peppers, red onion, cauliflower and green beans), 2.5 cups water
- Snack 1: handful M&Ms.
- Snack 2:


Exercise/activities:
- errands

P.O.T.S. symptoms experienced:
so far: headache, hand/feet numbness, arrhythmia, heart pounding, heat intolerance, shakes, weakness

Misc:
- sharp pains in my side