After being sick for so long, I finally have a name for my illness: Postural Orthostatic Tachycardia Syndrome, otherwise known as P.O.T.S.

A cardiac condition that's stripped me of my health, weight (causing me to drop to anorexic weight), self confidence, friends, jobs and continuing my education.

My goals are simple: gain weight, be healthier, and get out more. Basically, get my life back!

I'm also hoping to spread some awareness on this little known condition, and to highlight the struggles of the underweight and people with "invisible illnesses."

Monday, November 29, 2010

Good news... sort of

It turns out that I was right, the pain I've been feeling was (read: is probably) an ovarian cyst.

I woke up at dawn this morning in the most excruciating pain I've ever felt. I thought maybe it was food poisoning, but it didn't feel the same. It was like cramps, but incredibly sharp and incredibly intense.

I actually though I was going to need the emergency room, (Zack was worried it was my appendix) but thankfully TONS of Motrin helped. Walking is still painful and I can't tie my shoes, but at least I'm not screaming out like I did this morning trying to get out of bed! I even managed to finish my Christmas shopping.

So, the good news is that it's not related to my medicine at least- the bad news is that it hurts like hell, and who wants a cyst on their ovaries? lol (oh, and minor bad news was that Tops was all out of my heartburn meds, so it might be a rough night)

Sunday, November 28, 2010

Thanksgiving

This past week was Thanksgiving- one of my favorite holidays purely because the food is unbelievably good. How can you go wrong with turkey, stuffing, mashed potatoes and gravy, green beans and cranberry sauce? Not to mention the pumpkin pie to cap it all off!

Unfortunately, I caught a bug or something (maybe complications of my meds?) and was sick most of the week. I had/ still have pain in my lower stomach. I haven't gotten sick (upper or lower) but it hurts like mad. I hope it's not like...an ovarian cyst; which I've had before.

Thanksgiving dinner was the first real food I was able to eat. I thought maybe I wasn't drinking enough fluids to work with my meds, but I've upped it a lot and am still in pain.

I'm not sure if it was just foods I wasn't used to eating, or what. So I'm cutting out anything remotely new, and going back to what I've been eating (pre-holiday foods) and we'll see if that helps!

I go back for my check-up soon, so it'll be something I have to discuss with my doctor.

Thursday, November 18, 2010

Fate intervenes?

Last night, I was looking all over this site to see if there was any way to suspend this blog- where I wouldn't lose the domain name, but I could put it on 'pause' for a while.

As I was doing this (which I couldn't find a way, btw) I came across my "Stats" page - which I never knew existed. It was very interesting- apparently I've had over 300 page views in this month alone, not including my own. That FLOORED me.

Plus, one of my referring sites (the sites people get here from) was 43 Things, so there are some very nice people on 43T who are kind enough to come check in on me.

Now I'm undecided about discontinuing this. It really was a great way to keep track on my day-to-day stuff that I don't want to clog up 43T with, and it seems like a shame to stop something that was actually helping me because of one or two people. The reason I started it was to help raise awareness for people who are suffering from the inability to gain weight/dealing with anorexia/and (now) to help shed some light on a little-known condition.

What to do?

Thursday, November 11, 2010

I was going to update...

but I decided that I'm just not going to do it anymore. The people who "follow" me on here, I talk to in other venues/arenas and that's good enough for me.

Unlike other people, I'm not okay with just anyone/everyone reading my stuff- and I suspect it's more than just "official followers" who are creeping my stuff anonymously.

So, this message will be up for a week to let anyone who reads this know, then this whole thing will be deleted.

I'll talk to you all either on 43Things, or in person. To everyone else, sorry but your creeping is over.

day 10

Sucky. It might be because of milk products though. Zack had asked me to try an Ensure to see if it was just pure milk products- apparently not because it made me ill most of the day. Later on I was feeling better, and today (which is 'tomorrow' I'm writing this about yesterday lol) I'm going to go milk product free 100% and see how I fare.

Wednesday, November 10, 2010

day 9

Well it's been just over a week. Generally, I think I like what this medicine is doing- at least I can get out of bed without having a heart attack, and wash my hair without my arms going numb, and use the bathroom without passing out (I know, TMI, but it's important to keep track of lol)

I'm still not feeling great exactly, but I am able to get out of the house for a couple of hours so that's definitely an improvement. I think after this week, I might try starting to exercise a little every day.

I'm starting to definitely suspect I'm becoming lactose-intolerant. Anytime I eat or drink anything milk-related it just sits like a rock and my stomach is constantly upset. It's weird because I drank TONS of milk when I was younger and now I can't tolerate it at all- which suck because I love it...and cream cheese, sour cream, shredded cheese...bummer.

Tuesday, November 9, 2010

Day 8

Pretty decent day. I baked some and did grocery shopping early which was great.

I'm starting to be a little concerned about the amount of hair-loss I'm having. I know that stress can cause it (that's happened to me before) but I'm losing at least a hundred strands a day.