Not a bad day. Chest is still pounding, but the headaches have subsided. Hopefully the upset stomach will go away.
I'm starting to get discouraged because I'm no longer feeling as great as the first half day. I know that you can't feel awesome all the time, but after almost two eyars of feeling like hell- I was hoping for more than two pretty good" days.
Maybe the dosage still isn't right.
Monday, November 8, 2010
Sunday, November 7, 2010
days 5 and 6
pros: got out a lot yesterday- much longer than I have in over 6 months.
cons: had a pretty bad day today and later last night- horribly upset stomach, headaches, weakness
...bummer.
cons: had a pretty bad day today and later last night- horribly upset stomach, headaches, weakness
...bummer.
Friday, November 5, 2010
Day 4
Overall, a decent day. I had heart murmurs again which sucks, and my stomach was upset for a good portion of the day. Just have to wait it out I guess.
Wednesday, November 3, 2010
day 3
Liquids: Not great. 5 cups maybe. Have to do better tomorrow.
Diet: Nutella on bread, cheddar rice cakes, chicken, mac and cheese, misc halloween candy
Florinef: taken
Cons: migraine, nausea this morning
Pros: being able to go out for a longer time than usual
Diet: Nutella on bread, cheddar rice cakes, chicken, mac and cheese, misc halloween candy
Florinef: taken
Cons: migraine, nausea this morning
Pros: being able to go out for a longer time than usual
Tuesday, November 2, 2010
day 2
Liquids: about 6 cups. Not bad.
Diet: half onion bagel with cream cheese, steak, pretzels, half hamburger, potato pancakes, leftover halloween candy
Florinef: taken
How I feel...
Pros: This morning, I felt AWESOME. Much better than I have in over a year. I went out to vote, and walked in the cold and didn't have any palpitations! I speed walked, and didn't get short of breath or have my arrhythmia. I washed my hair without my arms going numb!
Cons: Towards the middle of the day, I started to have bad indigestion again- I hope that goes away. I also got very run down, and after eating dinner had a very upset stomach and a headache all night. They say most side effects wear off after a week, so I'm hoping.
Diet: half onion bagel with cream cheese, steak, pretzels, half hamburger, potato pancakes, leftover halloween candy
Florinef: taken
How I feel...
Pros: This morning, I felt AWESOME. Much better than I have in over a year. I went out to vote, and walked in the cold and didn't have any palpitations! I speed walked, and didn't get short of breath or have my arrhythmia. I washed my hair without my arms going numb!
Cons: Towards the middle of the day, I started to have bad indigestion again- I hope that goes away. I also got very run down, and after eating dinner had a very upset stomach and a headache all night. They say most side effects wear off after a week, so I'm hoping.
day 1
Diet:
Liquids: 7-8 cups. About half a gallon, almost 2 Liters which is what I'm supposed to be drinking so that's good.
Food: Pancakes, potato with sour cream/cheese/bacon bits, steak (made even more delicious because I won it in a bet), popcorn, various snacks.
Florinef: taken- first day!
Negative Side Effects:
- I could tell when my body absorbed it- it gave me a weird rush, almost like having a CT scan done (if you've never had one, I can't explain it)- almost like getting a saline drip where you can feel it run through your body in a cold wave.
- sharp pain in my shoulder, I don't know if this was from an injury, or not as aches and pain are a side effect
- headache...mostly in one spot, made me a little nervous but I didn't want to overwhelm my body by taking motrin too
- indigestion, pretty bad actually
- chills
Positive Side Effects:
- no intense heart pounding when I stand up
- increased appetite? (maybe, it's hard to tell- I have a couple of hungry days now and then, so it might not have anything to do with this)
- no intense vomiting feeling immediately following eating
Overall Opinion: Pending. I like not having my heart pound constantly, but I am verrrry achey and the indigestion is pretty rough so we'll see.
Liquids: 7-8 cups. About half a gallon, almost 2 Liters which is what I'm supposed to be drinking so that's good.
Food: Pancakes, potato with sour cream/cheese/bacon bits, steak (made even more delicious because I won it in a bet), popcorn, various snacks.
Florinef: taken- first day!
Negative Side Effects:
- I could tell when my body absorbed it- it gave me a weird rush, almost like having a CT scan done (if you've never had one, I can't explain it)- almost like getting a saline drip where you can feel it run through your body in a cold wave.
- sharp pain in my shoulder, I don't know if this was from an injury, or not as aches and pain are a side effect
- headache...mostly in one spot, made me a little nervous but I didn't want to overwhelm my body by taking motrin too
- indigestion, pretty bad actually
- chills
Positive Side Effects:
- no intense heart pounding when I stand up
- increased appetite? (maybe, it's hard to tell- I have a couple of hungry days now and then, so it might not have anything to do with this)
- no intense vomiting feeling immediately following eating
Overall Opinion: Pending. I like not having my heart pound constantly, but I am verrrry achey and the indigestion is pretty rough so we'll see.
Monday, November 1, 2010
change of pace
I had an idea today to use this as more-or-less a journal (which is basically is) to record how I do on a day-to-day basis with the drug trial(s) I'm starting. I have to be on Florinef for a month, and then go back to the doctor- by that time, I probably won't remember what things were really like over the course of the month- so why not write it down? Worth a shot at least lol
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