Yesterday, I had another follow up with my POTS specialist. She still seems happy about my progress and doesn't seem to understand my frustrations. After all, I'm doing much better than most people with my condition, so I should be happy!
Given that I'm intending to go to grad school in the fall and may possibly be moving, I'm trying to push her even harder to get me well; or at least better than I am. She's upped my midodrine dose, and I've asked about cardiac rehabs and exercise programs.
Some people get POTS as the result of deconditioning; which is why they are sent for exercise programs to build up their hearts again. Seeing as that's not the case for my POTS, I'm doubtful about an exercise program or cardiac rehab 'curing' me, but I'm willing to give exercise a shot as well as I can. While it may not 'cure' me, I'm sure that increasing my level of fitness is just good for me overall.
She said that they hope to be opening a cardiac rehab here in Buffalo some time in the next few months, and (in the meantime) suggested either a stationary bike, rowing machine or just going for walks. I have neither machine, so the obvious choice is walking.
I'm going to be working on this as my next POTS challenge!
The bike defo works and exercising laying down. Just strap weights to your legs and pedal in the air if you have no bike will do the trick. Leight weights obviously :). Exercise is key to getting better.
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