After being sick for so long, I finally have a name for my illness: Postural Orthostatic Tachycardia Syndrome, otherwise known as P.O.T.S.

A cardiac condition that's stripped me of my health, weight (causing me to drop to anorexic weight), self confidence, friends, jobs and continuing my education.

My goals are simple: gain weight, be healthier, and get out more. Basically, get my life back!

I'm also hoping to spread some awareness on this little known condition, and to highlight the struggles of the underweight and people with "invisible illnesses."

Saturday, February 4, 2012

check up

I haven't posted in a while because I've been without a computer for over a month- not that that's necessarily a bad thing. Here's what's been going on:

- Last week, I traveled out of state to see my sister graduate; which was taxing on my body but worth it to be there for her. I've spent the last week attempting to recover.

-I read an article saying that the FDA isn't sure whether they'll keep midodrine on the market. Studies that needed to be completed haven't been done, but it's the only drug of it's kind for dysautonomics so the pull out is in limbo. I haven't been super in love with how I'm doing on it, but I don't have an alternative either. This is something I'm going to ask my specialist about when I go next week.

- My POTS has come crawling to a standstill again; even a back slide. Yesterday my heart rate skyrocketed while trying to take a shower, and I had to lay down after twenty minutes of sitting at a computer desk. I am NOT happy. As I'm working on finding a new job, and have applied to grad school I cannot be taking these backwards steps. I'm upset, angry and worried.

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