After being sick for so long, I finally have a name for my illness: Postural Orthostatic Tachycardia Syndrome, otherwise known as P.O.T.S.

A cardiac condition that's stripped me of my health, weight (causing me to drop to anorexic weight), self confidence, friends, jobs and continuing my education.

My goals are simple: gain weight, be healthier, and get out more. Basically, get my life back!

I'm also hoping to spread some awareness on this little known condition, and to highlight the struggles of the underweight and people with "invisible illnesses."

Saturday, September 10, 2011

I have a job!

Last weekend, I was hired at a local business.
(I say that, but really they're a national business with a local branch)

Anyways, I started work right away this week. I worked two four-hour shifts. So far, I like it.
My POTS, however, doesn't seem to like it. I have a really hard time getting moving in the morning despite the motivation to do so. I did some research and it seems like this is normal for a POTS patient.

I've been wearing my compression stockings to my shifts and they seem to do an okay job at helping me. I know they're helping somewhat because I do a lot of crouching/standing stocking shelves and I don't get as dizzy or disoriented as I used to but when I'm working the customer service end of things, I have a really hard time still with the pooling of blood in my feet. Yesterday, just standing there, I could feel all of the blood draining down into my legs.

The toughest parts are still the insomnia and the nausea. I eat and I get nauseous; I don't eat and I still get nauseous. When I put the compression stockings on, I'm nauseous and when I take them off...you guessed it! Nauseous.

Last night, and today, I'm achy, shaky and exhausted. My brain's very foggy too and my vision's wonky. I'm going to see the POTS specialist this week, so I'll be telling her all of this and seeing what she has to say.
***
It's hard. Much harder than I thought it would be- and it's only eight hours a week. I can't imagine doing any more just yet and that upsets me. I'm in my mid-twenties and I have no savings anymore thanks to POTS, and I'm completely worn out just working eight hours. There was a lot more that I wanted to do, and have done, in my life than this. Right now, I'm hoping that I can at least make enough money to pay my bills and pay for my meds every month...which looks like it's going to be tight. I guess we'll see. For now, I'm just grateful that someone is willing to take me on, POTS and all.

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