Write a list of the 10 things you need (or love) most.
Honestly, there are a lot of things I could live without, but these are the things that I prefer to have to make my life more enjoyable/livable:
- My dogs. They are the lights of my life and I would be miserable and lonely without them.
- The internet. I could live without it, but I enjoy having it. It allows me to connect with other people and make friends - POTSies and non-POTSies alike!
- Notebook paper (and a writing utensil.) I'm a compulsive lister. I make lists all of the time about things I want to accomplish, need to do, have to ask doctors, important stats, etc. I also enjoy writing actual mail.
- The postal system. Again, I love to send mail and packages to my family members and to friends.
- Meds. The last thing I ever wanted was to be on medication. I hate it. I resent it. I tried everything to keep from being on it and that just wasn't possible. I've come to terms with more-or-less needing medication. I don't NEED it; I could be a vegetable somewhere...but I greatly appreciate having it because it allows me to lead a relatively normal life.
- Compression stockings. Same reasons as above. They are ugly, and a pain in the neck to get on, and make me feel about a hundred years old. But, with them on, I feel human again and I'm able to function in ways that I had only craved for years. They're an ugly, embarrassing blessing.
- My "Type A" personality. It's kept me going and fighting long after I wanted to. It's come up with new causes for me to lend my voice to, and has pushed me to join and start and take part in things I never would have without it.
- My support system. Sometimes it feels like there's no one there, but even on my worst days I know there is at least one person that I can turn to.
- Information. Knowledge is power. Period.
- Bare necessities. I know that even though POTS isn't something I asked for, and that it's been difficult, so far I've been lucky enough (through family support) to have food to eat and somewhere to lay my head at night.
Type A personality, I definitely agree! I heard that most people with POTS/EDS have type A personality, too! (who knows if it's true?) Also, without the internet and the chance to talk to other POTSy's knowledge would be so much more limited! I couldn't imagine my health without my support system and other POTS friends :)
ReplyDeleteLove your list. I will be making one soon!
xoxo
Erin