After being sick for so long, I finally have a name for my illness: Postural Orthostatic Tachycardia Syndrome, otherwise known as P.O.T.S.

A cardiac condition that's stripped me of my health, weight (causing me to drop to anorexic weight), self confidence, friends, jobs and continuing my education.

My goals are simple: gain weight, be healthier, and get out more. Basically, get my life back!

I'm also hoping to spread some awareness on this little known condition, and to highlight the struggles of the underweight and people with "invisible illnesses."

Thursday, November 18, 2010

Fate intervenes?

Last night, I was looking all over this site to see if there was any way to suspend this blog- where I wouldn't lose the domain name, but I could put it on 'pause' for a while.

As I was doing this (which I couldn't find a way, btw) I came across my "Stats" page - which I never knew existed. It was very interesting- apparently I've had over 300 page views in this month alone, not including my own. That FLOORED me.

Plus, one of my referring sites (the sites people get here from) was 43 Things, so there are some very nice people on 43T who are kind enough to come check in on me.

Now I'm undecided about discontinuing this. It really was a great way to keep track on my day-to-day stuff that I don't want to clog up 43T with, and it seems like a shame to stop something that was actually helping me because of one or two people. The reason I started it was to help raise awareness for people who are suffering from the inability to gain weight/dealing with anorexia/and (now) to help shed some light on a little-known condition.

What to do?

Thursday, November 11, 2010

I was going to update...

but I decided that I'm just not going to do it anymore. The people who "follow" me on here, I talk to in other venues/arenas and that's good enough for me.

Unlike other people, I'm not okay with just anyone/everyone reading my stuff- and I suspect it's more than just "official followers" who are creeping my stuff anonymously.

So, this message will be up for a week to let anyone who reads this know, then this whole thing will be deleted.

I'll talk to you all either on 43Things, or in person. To everyone else, sorry but your creeping is over.

day 10

Sucky. It might be because of milk products though. Zack had asked me to try an Ensure to see if it was just pure milk products- apparently not because it made me ill most of the day. Later on I was feeling better, and today (which is 'tomorrow' I'm writing this about yesterday lol) I'm going to go milk product free 100% and see how I fare.

Wednesday, November 10, 2010

day 9

Well it's been just over a week. Generally, I think I like what this medicine is doing- at least I can get out of bed without having a heart attack, and wash my hair without my arms going numb, and use the bathroom without passing out (I know, TMI, but it's important to keep track of lol)

I'm still not feeling great exactly, but I am able to get out of the house for a couple of hours so that's definitely an improvement. I think after this week, I might try starting to exercise a little every day.

I'm starting to definitely suspect I'm becoming lactose-intolerant. Anytime I eat or drink anything milk-related it just sits like a rock and my stomach is constantly upset. It's weird because I drank TONS of milk when I was younger and now I can't tolerate it at all- which suck because I love it...and cream cheese, sour cream, shredded cheese...bummer.

Tuesday, November 9, 2010

Day 8

Pretty decent day. I baked some and did grocery shopping early which was great.

I'm starting to be a little concerned about the amount of hair-loss I'm having. I know that stress can cause it (that's happened to me before) but I'm losing at least a hundred strands a day.

Monday, November 8, 2010

Day 7

Not a bad day. Chest is still pounding, but the headaches have subsided. Hopefully the upset stomach will go away.

I'm starting to get discouraged because I'm no longer feeling as great as the first half day. I know that you can't feel awesome all the time, but after almost two eyars of feeling like hell- I was hoping for more than two pretty good" days.

Maybe the dosage still isn't right.

Sunday, November 7, 2010

days 5 and 6

pros: got out a lot yesterday- much longer than I have in over 6 months.

cons: had a pretty bad day today and later last night- horribly upset stomach, headaches, weakness


...bummer.