Tomorrow

I'm going to meet with the specialist who will, hopefully, be able to tell me if I have EDS or not. While I'm sure I probably don't have it, I'll be glad to hear for sure seeing as the kind that would be most likely is the vascular one; which does not have very good stats. With any luck, he'll be able to figure out why my hand keeps turning purple, and why my arm and leg ache constantly! Especially, now that I know it's not a cardiac, circulatory, or neurological issue.

I'm also glad that my MRI came back as normal, meaning my vision loss was just an aural migraine! I'm very relieved. I have my fingers crossed that those won't become a frequent thing as that scared the bejeezus out of me!

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As far as an update on POTS goes, I started my higher dosage of Midodrine and my aches seemed to get worse. I started to get nasty headaches as well. I've dropped back to my original dose for a day or so and my headache (which has been around for five days!) has significantly decreased. I'm going to talk to my specialist about it at my next appointment because I saw some improvements fatigue-wise with the higher dose, and some drawbacks. I'd be curious to see what she has to say.